Social support for parents of children with leukemia

Authors

DOI:

https://doi.org/10.71357/hsij.v3i1.49

Keywords:

Social support, Parents, Children with leukemia, Emotional support, Instrumental support

Abstract

Background: The prevalence of children with leukemia tends to increase. Leukemia treatment requires a long period of time which has physical, psychological and social impacts on children and parents which affect their quality of life. Social support obtained protects parents in facing times of stress.

Objective: To determine social support for parents who have children with leukemia.

Method: Quantitative research type. The research sample consisted of 30 respondents taken using convenient sampling techniques. Data collection instrument using a questionnaire. Data were analysed with descriptive statistics.

Results: The majority of parents who have children with leukemia are over 35 years old (73.3%), have elementary education (43.3%), work as housewives (53.3%), and most parental category is mothers (80.0%). Mean value of social support (66.43), highest social support category (76.7%). Social support questionnaire items are highest in the family dimension of form of emotional support and lowest form of emotional support. Friend dimension is lowest form of instrumental support and highest form of emotional support. The dimension of closest person is the highest form of emotional support and lowest is the form of instrumental support.

Conclusion: Social support from family, friends, and close people is needed for parents who have children with leukemia. Because it can provide positive energy for parents and children, the attention, security, and comfort provided can increase their confidence. Recommendations for friends and parents to provide instrumental support in form of being ready to help parents who have children with leukemia when experiencing difficulties both facilities and material.

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References

Bannon, S. A., Foglesong, J., DiNardo, C. D. (2017). Germline mutations associated with leukemia in childhood: New discoveries and emerging phenotypes. Current Genetic Medicine Reports, 5(2):59-65. https://doi.org/10.1007/S40142-017-0118-5

Basyuk, N., Gordienko, O., Dmytruk, O., Marushchak, O., & Miroshnychenko, O. (2023). Socio-economic factors of creating the educational environment of a higher education institution as a condition for the formation of professional competencies of future specialists in socionomic professions. Financial and Credit Activity Problems of Theory and Practice, 1(48), 461–472. https://doi.org/10.55643/fcaptp.1.48.2023.3950

Boyden, J. Y., Hill, D. L., Carroll, K. W., Morrison, W. E., Miller, V. A., & Feudtner, C. (2020). The association of perceived social support with anxiety over time in parents of children with serious illnesses. Journal of Palliative Medicine, 23(4),527-534. https://doi.org/10.1089/jpm.2019.0387

deSmith, A. J., Lavoie, G., Walsh, K. M., Aujla, S., Evans, E., Hansen, H. M., et al. (2019). Predisposing germline mutations in high hyperdiploid acute lymphoblastic leukemia in children. Genes, Chromosomes and Cancer, 58(10):723-730. https://doi.org/10.1002/GCC.22765

Eilertsen, M. E., Hjemdal, O., Le, T. T., Diseth, T. H., & Reinfjell, T. (2016). Resilience factors play an important role in the mental health of parents when children survive acute lymphoblastic leukaemia. Acta Paediatrica, International Journal of Paediatrics, 105(1). https://doi.org/10.1111/apa.13232

Eiser, C., & Upton, P. (2007). Costs of caring for a child with cancer: A questionnaire survey. Child: Care, Health and Development, 33(4). https://doi.org/10.1111/j.1365-2214.2006.00710.x

Gise, J., & Cohen, L. L. (2022). Social Support in parents of children with cancer: A systematic review. In Journal of Pediatric Psychology (Vol. 47, Issue 3). https://doi.org/10.1093/jpepsy/jsab100

Hidayah, N., & Fariana, Y. R. N. (2024). Lactation preparation for pregnant women to prevent stunting. Health Sciences International Journal, 2(2), 169-176. https://hsij.anandafound.com/journal/article/view/42

Kallai, A., Ungvári, U., Fekete, M., Maier, A. B., Mikala, G., Andrikovics, H., & Lehoczki, A. (2024). Genomic instability and genetic heterogeneity in aging: insights from clonal hematopoiesis (CHIP), monoclonal gammopathy (MGUS), and monoclonal B-cell lymphocytosis (MBL). GeroScience, https://doi.org/10.1007/s11357-024-01374-y

Kartika, L., Ani, M., Mariyana, R., Yudianto, A., Wijayati, S., Sitompul, M., Ulfa, A. F., & Purba, D. H. (2021). Basic pediatric nursing [in Indonesia]. Medan: Penerbit Kita Menulis.

Khalil, M. m., Malik, E. M., Alnair, N. M. A., & Abu, I. I. M. (2019). Factors affecting health seeking behaviors among mothers of under five children attending primary health care centers, Sudan. Science Journal of Public Health, 7(6), 181-186. https://doi.org/10.11648/j.sjph.20190706.11

Ma, N., Chen, R., Bai, Y., Zhang, W., Chen, Z., Zhou, J., et al. (2024). A longitudinal study on the effects of social support on self-stigma, psychiatric symptoms, and personal and social functioning in community patients with severe mental illnesses in China. International Journal of Social Psychiatry, 70(5):957-966. https://doi.org/10.1177/00207640241245932

Maharani, K. D., Karini, S. M., & Agustin, R. W. (2015). Case study of the process of achieving happiness in mothers who have biological children with asperger syndrome [in Indonesia]. Jurnal Psikologi Fakultas Kedokteran Universitas Sebelas Maret, 7(1),42-56.

Mahayaty, L., Sari, E., Artin, B., Prasetyo, W., & Santiasari, R. N. (2022). Early detection of cancer in children [in Indonesia]. Pelita Abdi Masyarakat, 2(2),69-73.

Nathalia, A., Rahmawati, D., Nastiti, K., & Salmarini, D. D. (2024). Factors influencing the occurrence of exclusive breastfeeding failure in six-month-old infants. Health Sciences International Journal, 2(2), 96-103. https://hsij.anandafound.com/journal/article/view/31

NCI. (2024). Cancer in children and adolescents. National Cancer Institute at the National Institutes of Health. https://www.cancer.gov/types/childhood-cancers/child-adolescent-cancers-fact-sheet#how-common-is-cancer-in-children

Nurlina, N., Syam, Y., & Saleh, A. (2021). Effective music therapy for anxiety reduction in cancer patients [in Indonesia]. Jurnal Keperawatan Silampari, 4(2). https://doi.org/10.31539/jks.v4i2.1938

Nursyamsiyah. (2019). Social support of parents of children with Leukemia. Belitung Nursing Journal, 5(4). https://doi.org/10.33546/bnj.792

Putri, E., Khasanah, L., Sari, I. M., Marhamah, L., Rsud, A., Surakarta, M., Ki, J., & Dewantara, H. (2023). Application of music therapy on hemodynamics in children with leukemia in Flamboyan 9 Room, Dr. Moewardi Surakarta Hospital [in Indonesia]. Jurnal Ilmu Kesehatan Dan Gizi (JIG), 1(4).

Rusmiati, T., & Maria, L. (2023). The relationship between family support and motivation of breast cancer patients who have undergone chemotherapy [in Indonesia]. Jurnal Kesehatan Dan Pembangunan, 13(25),159-169. https://doi.org/10.52047/jkp.v13i25.195

Ruhban, I., Szpunar, S., & Anne, P. (2024). Household income disparities in childhood acute lymphoblastic leukemia incidence and mortality: A US population-based analysis between 2000 and 2020. MI Medical Education and Health Bulletin, 1(2 (supplement)):A111. https://doi.org/10.69735/001c.121525

Sakinah, N. (2018). Social support for parents who have children with cerebral palsy [in Indonesia]. Psikoborneo: Jurnal Ilmiah Psikologi, 6(2). https://doi.org/10.30872/psikoborneo.v6i2.4557

Siyoto, S., & Sodik, A. (2015). Basic Research Methodology [in Indonesia]. Literasi Media Publishing.

Shaw, A., Scharkow, M., & Wang, Z. J. (2021). Opening a conversation on open communication research. Journal of Communication. https://doi.org/10.1093/joc/jqab033

Shettima, F. B. ., Wakil, M. A. ., Rabbebe, I. B. ., Kudale, H. A. ., & Pindar, S. K. . (2022). The relationship between social support, internalized stigma of mental illness and recovery attitude among patients with schizophrenia in Maiduguri. American Journal of Psychology, 4(1), 10–21. https://doi.org/10.47672/ajp.1004

Sugiyono. (2016). Quantitative, qualitative and R & D Research Methods [in Indonesia]. Bandung: Alfabeta.

Umar, N. F. A., Sumi, S. S., & Uchira. (2022). The relationship between social support and resilience of parents with children with leukemia [in Indonesia]. Jurnal Ilmiah Mahasiswa & Penelitian Keperawatan, 1.

Utami, K. C., & Puspita, L. M. (2020). Cancer at Bali Children's Cancer Care Foundation [in Indoneisa]. Community of Publishing In Nursing, 8(2).

Walsh, K. (2024). The emergence of clonal hematopoiesis as a disease determinant. Journal of Clinical Investigation, 134(19): e180063. https://doi.org/10.1172/JCI180063.

Wheeler, D. C., Boyle, J., Carli, M., Ward, M. H., & Metayer, C. (2023). Neighborhood deprivation, indoor chemical concentrations, and spatial risk for childhood leukemia. International Journal of Environmental Research and Public Health, 20(4), 3582. https://doi.org/10.3390/ijerph20043582

WHO. 2017. The WHO STEPwise approach to noncommunicable disease risk factor surveillance. Geneva: WHO. https://cdn.who.int/media/docs/default-source/ncds/ncd-surveillance/steps/steps-manual.pdf?sfvrsn=c281673d_10

Williams, D. R., & Mohammed, S. A. (2009). Discrimination and racial disparities in health: Evidence and needed research. Journal of Behavioral Medicine, 32(1). https://doi.org/10.1007/s10865-008-9185-0.

Zhang, X., Wang, X., Wang, H., He, X., and Wang, X. (2022). Stigmatization and Social Support of Pregnant Women With HIV or Syphilis in Eastern China: A Mixed-Method Study. Front. Public Health 10:764203. https://doi.org/10.3389/fpubh.2022.764203

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Published

2025-02-28

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How to Cite

Carolin, P., Fetriyah, U. H. ., Palimbo, A., & Mahmudah, R. (2025). Social support for parents of children with leukemia. Health Sciences International Journal, 3(1), 26-39. https://doi.org/10.71357/hsij.v3i1.49

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